Caiden’s Hope Foundation: Part 2

Guest Post by: Wayne Keller

This week we continue our series “Caiden’s Hope Foundation” from Part 1

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A few weeks later after gaining some weight he was released and was home. Once again it was a beautiful day.

Caiden’s Hope, Vice President Terry Call tells a similar story of her daughter Jennifer and grandson Caiden. “When we first went into the NICU we were still in shock, it was very overwhelming. From the worry, the world renowned hospital, the rules, the unknown. They were moving our grandson when we got there, from one pod to another. Later we learned that the babies were placed in the pods by how sick they were. Our sweet little grandson Caiden was in the last pod. There were always at least three of us visiting so one of us always had to take a turn waiting in the waiting room. Whoever went in first reported the details by text message. The first question was what he weighed that day since he had been born at only 3 ½ lbs. Weight was a big deal. Then we would find out what tests or procedures would be done. What was happening with him next? At the beginning we couldn’t hold him, and then only our daughter or Caiden’s dad Chris could hold him. They had to share him because his little body could only take one disturbance of holding per day. It had to be a minimum of a 30 minute commitment because moving him meant having a respiratory therapist disconnect him from the machines until he was situated, and then reconnect him. Then the same had to be done when he was put back. Later we learned to change his diaper around all of the wires, and learned to weigh the diapers. Eventually mom got to feed him by holding a large syringe filled with formula or mom’s milk, and a tube connected to it went into his NG tube. We washed our hands so many times a day that our hands got chapped. We learned where the nurses hand repair cream was.

We often stayed at a hotel affiliated with the hospital at a discounted price of $125.00 a night. They provided a continental breakfast which helped with the cost. The hospital located 3 blocks from the hospital was within walking distance. It was the only exercise we would get, and it was rejuvenating. Lunch and dinner had to be eaten out. Very often we ate in the hospital cafeteria which wasn’t that great and was very expensive. They sold fruit and salad by the weight which was very expensive and made eating healthy very difficult.

Our sweet little grandson stayed in the NICU for 2 months so the expense was huge! As a family we had to have special training before he could go home to insure that we knew how to care for him as he still had many medical issues. Though our time in the NICU was very long and stressful, we are so grateful for the gifted doctors and nurses that fought for his life and won. We know that God has big plans for Caiden’s life.”

Caiden’s Hope Foundation was formed to assist other families facing similar “trauma” in their lives. Not physical trauma for the parents, but certainly emotional and financial trauma. Lives are turned upside down when a new healthy baby is brought into a family, but when additional care is needed; families are faced with even greater amounts of stress. Will the child be ok, how can we afford the extra expense, where will we live while the baby is hospitalized? These and so many other questions haunt their minds and in the current economic climate even more families are faced with questions they can’t answer. This is where Caiden’s Hope lends a hand. By providing a warm, clean, safe hotel for a few days, purchasing gas for a family’s car or just paying for parking at the hospital, Caiden’s Hope gives each family a sense of the light at the end of the tunnel.

Click here for “Caiden’s Hope Foundation: Part 1“

download (3)About Caiden’s Hope Foundation: Caiden’s Hope Foundation provides travel support for families with a child hospitalized in the NICU for an extended period of time.  Hospital caseworkers should contact Caiden’s Hope directly to determine if support is possible. Please visit us at our website, Caiden’s Hope Foundation, our Facebook Page, or join us on Twitter.  Additionally, please listen to the following audio clips: Caidens’s Hope Foundation Audio – 1 and Caiden’s Hope Foundation Audio  - 2  Video’s can also be seen on YouTube: Caiden’s Mother, Father, Grandmother, and Grandfather.

 
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