Sharing Your PTSD Thoughts And Voice Can Make A Difference

PTSD research

Photo: Salvatore Vuono

For a long time I didn’t share my PTSD or trauma ideas, thoughts or personal experience with anyone. I didn’t want people to know how crazy I actually was, or to suspect that I was struggling as much as I did. I hid it all. Well, hid it as much as I could, anyway.

Then I struggled through my PTSD recovery and set myself free — both symptomatically and verbally. Through the process of trying to find help, learning to communicate what I needed and how and when and why I realized that it’s so very important for us to share what we know because it’s the only way those who haven’t experienced trauma or symptoms of posttraumatic stress syndrome can hope to learn how to support and help us heal.

A few weeks ago Pam Phillips guest posted here about a PTSD study she’s conducting. One that’s designed to let our experience, knowledge and insights light the way for PTSD research. Last week I received an email from here that sheonly needs 10 more people for the study to be complete! This is a chance to make something meaningful come out of your experience. How about lending your voice to PTSD research? The process is very simple. Here’s how the project works:

  1. an electronic survey about your recovery from PTSD
  2. an optional written narrative.

You can participate in either or both parts of this project.

To participate in this study (or if you have questions), send an email to PTSDrecovery@gmail.com. In the email tell a little about your interest in this project. After an account has been created for you (usually with 24 hours), you will receive an email welcoming you to the study. If you would rather not use the computer, send a letter to PTSD Study, P.O. Box 164, Columbus, NC 28722 to receive written instructions on how to participate. Everyone welcome to participate. Men, please share your voice as the study has not yet heard enough from you!

You know how much I share my own thoughts and voice. I see so often the benefits of this both in terms of how it validates my own experience and how it helps others – surivors, caregivers and professionals. PTSD is such a mystery. Sharing your thoughts and voice helps demystify it, one word at a time.

 
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